What’s happening to May’s hips?
A year and a half ago, May had a major hip operation. She recovered well. There were some lingering issues — like she still crosses her legs and you can see one of the metal pieces holding her hip bone...
View ArticleUpcoming hip surgery grrrr: Part II
It’s a universal truth that all parents want to receive as little information possible about their child being cut open and stitched back together. Right? Oh, joy. It’s surgery season. May will receive...
View ArticleWhy I love my half-brained baby
Praise be all parents who lovingly pack a hospital bag for their child knowing they will be wheeled into surgery the next day. On Sunday night, I packed up my daughter’s clothes and nappies and all the...
View ArticleWhy I bottle-fed my daughter and don’t regret it
My breastfeeding battle lasted five weeks. “Battle” is the delicate way to describe it. The first five weeks of my daughter’s life, all spent in the neonatal intensive care unit at our local hospital....
View ArticleLet’s play the “What we wish therapists would say” game
After a collective 24 hours in therapies, medical appointments and general ‘Team May’ meetings this week, I have had my share of so-called experts. Because I don’t swear on my blog – and a big hello to...
View ArticleAn open plea to NHS England
Two years ago, my world fell out from under me when I was diagnosed with Acute Myeloid Leukaemia. I had no idea. The day my GP phoned and asked me casually if I might be able to make my way up to...
View ArticleUpdate on my plea to NHS England to save my life
Today, I received the call from my doctor that I’d been waiting for, that all of you – my friends and family especially – have been waiting for: My second transplant has been approved by NHS England....
View ArticleSomeone, please tell me what to do now?
Last Thursday, my husband and I skipped off to the polling station with my downstairs neighbours and our children. They played tag between the voting booths and we shushed them and giggled at the same...
View ArticleI have some major news to share
For the two months, I’ve kept quiet about something. A few of my friends know, and certainly my family does, but the story still seems so outlandish to me that I’ve barely said anything to anyone about...
View ArticleIt could have easily been me. My life rationed away.
I read a deeply disturbing article last night. I should have been asleep, but instead I scrolled through The Guardian’s web site and accidentally landed on a story that resonated all too closely to my...
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